Summary: Restore Your Voice ("we", "us", "our") respects your privacy. This policy explains what data we collect, how we use it, which third parties may receive it, and what rights you have — including the right to opt out of tracking entirely using our .
1. Who We Are
Organization: Restore Your Voice
Website: restoreyourvoice.org
Contact: info@restoreyourvoice.org
Restore Your Voice is a community-focused platform dedicated to supporting individuals with spasmodic dysphonia through research, information sharing, and community building.
2. Data We Collect
We may collect the following categories of information:
| Category | Examples | Legal Basis |
|---|---|---|
| Usage Data | Pages visited, time on site, browser type, IP address | Legitimate interest / Consent |
| Device Data | Device type, operating system, screen resolution | Legitimate interest / Consent |
| Form Submissions | Name, email address (if you contact us or join our survey) | Consent / Contract |
| Cookie Data | Session tokens, preference identifiers | Necessary / Consent |
| Survey Responses | Health-related responses submitted voluntarily | Explicit consent |
We do not sell personal data. We do not knowingly collect data from children under 13.
3. Cookies & Tracking Technologies
We use cookies and similar technologies. No non-essential cookies or scripts load until you give explicit consent via our consent manager. Cookies are categorized as follows:
| Category | Purpose | Can Opt Out? |
|---|---|---|
| Strictly Necessary | Authentication, security, session management | No — essential to function |
| Analytics | Understand how visitors use the site (Google Analytics, GTM) | Yes — via consent manager |
| Marketing | Advertising, retargeting, conversion tracking (Meta Pixel, Google Ads) | Yes — via consent manager |
| Functional | Enhanced features, embedded media, CRM widgets | Yes — via consent manager |
You can view or change your preferences at any time using the Cookie Preferences link in our website footer.
4. Third-Party Vendors
The following third-party services may receive your data when you consent to the relevant category. Each has its own privacy policy:
| Vendor | Category | Purpose | Privacy Policy |
|---|---|---|---|
| Google Analytics | Analytics | Page analytics, behavior reporting | policies.google.com/privacy |
| Google Tag Manager | Analytics | Tag deployment container | policies.google.com/privacy |
| Meta (Facebook) | Marketing | Pixel-based ad retargeting | facebook.com/policy.php |
| Google Ads | Marketing | Conversion tracking | policies.google.com/privacy |
| YouTube | Functional | Embedded video playback | youtube.com/howyoutubeworks/our-commitments/protecting-user-data/ |
| HubSpot | Functional | CRM, forms, lead tracking | legal.hubspot.com/privacy-policy |
No scripts from these vendors load until you provide consent via our cookie banner or preference center.
5. How We Use Your Data
- To operate and improve the website and its content
- To analyze how visitors use the site (analytics, with consent)
- To respond to inquiries and survey submissions
- To send research updates if you opt in to our newsletter
- To comply with legal obligations
We do not use your data for automated decision-making or profiling that produces legal effects.
6. Data Sharing & Transfers
We do not sell, rent, or trade your personal data. Data may be shared only:
- With third-party vendors listed above — only after consent is granted
- With our hosting provider (Base44) for infrastructure purposes
- If required by law or to protect rights and safety
If you are located in the EU/EEA and data is transferred to a third country, we ensure appropriate safeguards are in place (e.g., Standard Contractual Clauses).
7. Data Retention
We retain personal data only for as long as necessary to fulfill the purposes described in this policy. Analytics data is typically retained for 26 months. Form submission data is retained for as long as needed to fulfill your request. You may request deletion at any time.
8. Your Rights
Depending on your location, you may have the following rights:
| Right | Description |
|---|---|
| Access | Request a copy of the personal data we hold about you |
| Correction | Request correction of inaccurate data |
| Erasure | Request deletion of your data ("right to be forgotten") |
| Restriction | Request restriction of processing in certain circumstances |
| Portability | Receive your data in a portable format |
| Objection | Object to processing based on legitimate interest |
| Withdraw Consent | Revoke consent at any time without affecting prior lawful processing |
To exercise any of these rights, contact us at info@restoreyourvoice.org. We will respond within 30 days.
9. California Privacy Rights (CCPA / CPRA)
If you are a California resident, you have additional rights under the California Consumer Privacy Act (CCPA) and California Privacy Rights Act (CPRA):
- Right to Know: You may request disclosure of the categories and specific pieces of personal information collected about you in the past 12 months.
- Right to Delete: You may request deletion of personal information we have collected, subject to certain exceptions.
- Right to Opt Out of Sale / Sharing: We do not sell personal information. You may still opt out of cross-context behavioral advertising via our cookie consent manager.
- Right to Correct: You may request correction of inaccurate personal information.
- Right to Limit Use of Sensitive Personal Information: We do not use sensitive personal information for purposes beyond those disclosed here.
- Right to Non-Discrimination: We will not discriminate against you for exercising your CCPA rights.
To submit a verifiable consumer request, email info@restoreyourvoice.org with subject "California Privacy Request."
"Do Not Sell or Share My Personal Information": Use our link in the footer to opt out of analytics and marketing tracking at any time.
10. GDPR — EU/EEA Residents
If you are located in the European Union or European Economic Area, our legal bases for processing personal data include:
- Consent (Art. 6(1)(a) GDPR): For analytics, marketing, and functional cookies
- Legitimate Interest (Art. 6(1)(f) GDPR): For strictly necessary site operation
- Legal Obligation (Art. 6(1)(c) GDPR): Where required by law
You have the right to lodge a complaint with your national data protection authority (DPA). A list of EU DPAs is available at edpb.europa.eu.
11. Security
We implement appropriate technical and organizational measures to protect your data against unauthorized access, alteration, disclosure, or destruction. Our platform uses HTTPS encryption for all data transmission. However, no method of internet transmission is 100% secure.
12. Changes to This Policy
We may update this Privacy Policy from time to time. We will notify you by updating the "Last updated" date at the top. If changes are material, we will display a prominent notice on the website. Continued use of the site after changes constitutes acceptance of the updated policy.
13. Contact Us
For privacy-related questions, requests, or concerns:
Last updated: June 23, 2026
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